Following the Chancellor’s Budget, it is vital that the UK Government recognises the financial challenges faced by people affected by brain tumours, as well as the urgent economic case for action.
On 15 December, The Brain Tumour Charity will publish a new report, examining the financial impact of brain tumours on individuals, families and the wider economy. The themes reflect what we hear regularly from our community: variation in support, difficulties navigating welfare and employment systems, and the significant financial strain many households experience.
We’re asking for your support to help bring this to MPs’ attention.
Four simple steps to demanding action!
- Fill in your details using the form on this page. This helps us match you with your local MP.
- If you feel comfortable, include your personal experiences of being affected by a brain tumour diagnosis and explain why you’re demanding change. This will appear in your email to your MP.
- The email will be automatically generated using our template and the details you’ve included – you just need to hit the “Send message now” button. Don’t forget to let us know when you receive a reply!
- Share this campaign so we’re able to connect with as many MPs as possible and show them it’s an issue that matters to their constituents.
Why we are demanding change
Brain tumours are the biggest cancer killer of children and adults under 40, yet progress in diagnosis, treatment and support has remained far too slow. Too many people still face delayed diagnoses, limited access to specialist care, inconsistent rehabilitation and a welfare system that does not reflect the realities of living with a complex neurological condition.
Families often absorb the financial and emotional strain, while children and young people experience disrupted learning that affects their future opportunities. Our new report highlights how these challenges fall overwhelmingly on individuals and households — and how fragmented services leave people without the joined-up support they need.
By taking part in this campaign, you can tell your MP how a brain tumour has affected you, ask them to support the case for a National Brain Tumour Strategy, and invite them to attend our parliamentary event on 15 December. Your experiences can help shape conversations in Parliament and contribute to better, more consistent support for the brain tumour community.
What are we asking for?
We’re asking our supporters to contact their MP to highlight the urgent financial challenges faced by the brain tumour community and the need for a coherent national plan to improve diagnosis, treatment, rehabilitation and support. Your message will also invite them to attend our parliamentary event on 15 December, where we will share findings from our new financial report.
This situation is not inevitable. With national leadership, faster and better diagnosis, fairer access to care and rehabilitation, and sustained investment in research, outcomes can improve. A National Brain Tumour Strategy is now essential to drive the change that people urgently need.
Why aren’t we asking to meet parliamentarians in Northern Ireland, Scotland and Wales?
We are launching the report in Westminster and hope that we will MPs from all four nations attend. It remains vital that parliamentarians in Northern Ireland, Scotland and Wales also hear directly from their constituents about the challenges faced by people affected by a brain tumour. As part of the report launch on 15 December, we will be encouraging supporters to share a digital copy of the report with elected representatives in Holyrood, the Senedd and Stormont, ensuring that the findings inform work to improve diagnosis, care, support and outcomes in every nation of the UK.